domingo, 27 de janeiro de 2013

I “was” my voice


"My father’s robust health began to fail him in his late seventies and he died in late 1987. My brother, Peter, in the meantime, had become engaged to a Jewish girl and had taken her to meet “Dodo”—old Mrs. Dorothy Hickman—our only surviving grandparent. Later, and after she’d congratulated him on his choice, she rather disconcerted Peter by saying: “She’s Jewish, isn’t she?” He had agreed that this was the case and then she’d disconcerted him even further by saying, “Well, I’ve got something to tell you. So are you.”
Christopher Hitchens, Hitch-22: A Memoir

" The absorbing fact about being mortally sick is that you spend a good deal of time preparing yourself to die with some modicum of stoicism (and provision for loved ones), while being simultaneously and highly interested in the business of survival. This is a distinctly bizarre way of “living”—lawyers in the morning and doctors in the afternoon—and means that one has to exist even more than usual in a double frame of mind. The same is true, it seems, of those who pray for me. And most of these are just as “religious” as the chap who wants me to be tortured in the here and now—which I will be even if I eventually recover—and then tortured forever into the bargain if I don’t recover or, presumably and ultimately, even if I do.
(Loc. 227-32)

There is an even longer shot that I do propose to attempt, even though its likely efficacy lies at the outer limits of probability. I am going to try to have my entire DNA “sequenced,” along with the genome of my tumor. Francis Collins was typically sober in his evaluation of the usefulness of this. If the two sequencings could be performed, he wrote to me, “it could be clearly determined what mutations were present in the cancer that is causing it to grow. The potential for discovering mutations in the cancer cells that could lead to a new therapeutic idea is uncertain—this is at the very frontier of cancer research right now.” Partly for that reason, as he advised me, the cost of having it done is also very steep at the moment. But to judge by my correspondence, practically everybody in this country has either had cancer or has a friend or relative who has been a victim of it. So perhaps I will be able to contribute a little bit to enlarging the knowledge that will help future generations.

I say “perhaps” partly because Francis has now had to lay aside a lot of his pioneering work, in order to defend his profession from a legal blockade of its most promising avenue of endeavor. Even as he and I were having those partly thrilling and partly lowering conversations, last August a federal judge in Washington, D.C., ordered a halt to all government expenditure on embryonic stem–cell research. Judge Royce Lamberth was responding to a suit from supporters of the so–called Dickey–Wicker Amendment, named for the Republican duo who in 1995 managed to forbid federal spending on any research that employs a human embryo. As a believing Christian, Francis is squeamish about the creation for research purposes of these nonsentient cell clumps (as, if you care, am I), but he was hoping for good work to result from the use of already existing embryos, originally created for in vitro fertilization. These embryos are going nowhere as it is. But now religious maniacs strive to forbid even their use, which would help what the same maniacs regard as the unformed embryo’s fellow humans! The politicized sponsors of this pseudoscientific nonsense should be ashamed to live, let alone die. If you want to take part in the “war” against cancer, and other terrible maladies, too, then join the battle against their lethal stupidity.
(Loc. 379-96 )


LIKE SO MANY OF LIFE ’S VARIETIES OF EXPERIENCE, the novelty of a diagnosis of malignant cancer has a tendency to wear off. The thing begins to pall, even to become banal. One can become quite used to the specter of the eternal Footman, like some lethal old bore lurking in the hallway at the end of the evening, hoping for the chance to have a word. And I don’t so much object to his holding my coat in that marked manner, as if mutely reminding me that it’s time to be on my way. No, it’s the snickering that gets me down. On a much too regular basis, the disease serves me up with a teasing special of the day, or a flavor of the month. It might be random sores and ulcers, on the tongue or in the mouth. Or why not a touch of peripheral neuropathy, involving numb and chilly feet? Daily existence becomes a babyish thing, measured out not in Prufrock’s coffee spoons but in tiny doses of nourishment, accompanied by heartening noises from onlookers, or solemn discussions of the operations of the digestive system, conducted with motherly strangers. On the less good days, I feel like that wooden–legged piglet belonging to a sadistically sentimental family that could bear to eat him only a chunk at a time. Except that cancer isn’t so . . . considerate.

Most despond–inducing and alarming of all, so far, was the moment when my voice suddenly rose to a childish (or perhaps piglet–like) piping squeak. It then began to register all over the place, from a gruff and husky whisper to a papery, plaintive bleat. And at times it threatened, and now threatens daily, to disappear altogether. I had just returned from giving a couple of speeches in California, where with the help of morphine and adrenaline I could still successfully “project” my utterances, when I made an attempt to hail a taxi outside my home— and nothing happened. I stood, frozen, like a silly cat that had abruptly lost its meow. I used to be able to stop a New York cab at thirty paces. I could also, without the help of a microphone, reach the back row and gallery of a crowded debating hall. And it may be nothing to boast about, but people tell me that if their radio or television was on, even in the next room, they could always pick out my tones and know that I was “on” too.

Like health itself, the loss of such a thing can’t be imagined until it occurs. In common with everybody else, I have played versions of the youthful “Which would you rather?” game, in which most usually it’s debated whether blindness or deafness would be the most oppressive. But I don’t ever recall speculating much about being struck dumb. (In the American vernacular, to say “I’d really hate to be dumb” might in any case draw another snicker.) Deprivation of the ability to speak is more like an attack of impotence, or the amputation of part of the personality. To a great degree, in public and private, I “was” my voice. All the rituals and etiquette of conversation, from clearing the throat in preparation for the telling of an extremely long and taxing joke to (in younger days) trying to make my proposals more persuasive as I sank the tone by a strategic octave of shame, were innate and essential to me. I have never been able to sing, but I could once recite poetry and quote prose and was sometimes even asked to do so. And timing is everything: the exquisite moment when one can break in and cap a story, or turn a line for a laugh, or ridicule an opponent. I lived for moments like that. Now if I want to enter a conversation, I have to attract attention in some other way, and live with the awful fact that people are then listening “sympathetically.” At least they don’t have to pay attention for long: I can’t keep it up and anyway can’t stand to."
(Christopher Hitchens, Mortality, Loc. 466-93)